I am more housebound as time goes on and it becomes very difficult.
Initially it was more around danger and driving but now I notice and clearly recognise that there is quite a difference between my faints and blackouts.
I do have rather a nice bright yellow Saab convertible car up for sale at the bargain price of somewhere from £5,650 or the nearest offer because I have not been able to drive for more than a year.
My spare time is amazing. I have so much of it yet I never seem to do anything. The blackouts are particularly scary because they go on for such a long time and I remember nothing. I've probably sold my car already about ten times over.
Lewis performed in the Southwick drama production of Gel. He was absolutely wonderful and I loved seeing him perform.
However, very sadly I had to be taken out on two occasions. The first time, Tom took me in my wheelchair to get through the fit. We ended up going home early and missing a lot of it.
But I am extremely pleased to be able to note that the drama school made a DVD which I can show everybody whenever they come round.
The other occasion was at my friend's house for beauty treatments. These are the only times that I have left the house. I should have had more faith in the medical profession and stayed in doors.
My GP, community nurse and occupational health have been very good calling in and checking up on me and the staff team from St Barnabas Hospice, in Worthing, have been in.
I continue to have strange things going. For example, on the reconstruction side of my body I had a massive water blister come up for no obvious reason....
I had not been exposed to the sun and it doesn¹t hurt.
One evening when we had friends over I went to use our toilet and collapsed screaming. I remember nothing, as per usual, but the whole family were around me when I started to come round and Tom had taken the door off - and it is still off.
I barely go downstairs now and I am all over the place when I try to read, write or hold a good conversation. All of this doing nothing is surprisingly difficult. Tom, mum and I are having to synchronise diaries and I am unable to write or read for long.
My book is coming along nicely but I don't think that I have left enough space for the good, old days.
Stevan (Corr) who is the hospice's resident artist has been in a couple of times to help me work on the book cover and occupational health have been in and kitted us out.
My nephew has done some fabulous work on the book, even though when he or Stevan visit I either faint at their feet and chuck the odd pint of water over them and myself.
I would not have been able to do as much as I have without their help. So I have made short form notes for my nephew to pick up if that dreaded moment comes too soon.
I'm really dragging up the past which is mostly but not entirely good and it's stirring up a lot of emotion.
I can certainly see where I was coming from when I started at the beginning - 43 years are a lot of years to recall.
It is lovely to talk to everyone but it was especially good to catch up with my aunt and cousin. There is still so much that I need to do and so many people I need to catch up with.
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