People living with dementia in Sussex are facing a “perfect storm” of rising care and living costs that will leave many stranded in their own homes over Christmas, a charity has warned.
A survey by the Alzheimer’s Society found that fees have risen on average £1,200 a year for residential care, home care and daycare.
While the cost of living increase impacts almost everyone, people with dementia face additional pressures as many must pay for their own care, unlike those with other conditions that are treated by the NHS.
The survey also revealed that one in four of those struggling with the rising cost of living are retreating to just one room to save on energy bills, leaving them at risk of isolation which could see their condition worsen.
Kate Lee, CEO at the Alzheimer’s Society, said: “The rising cost of living has left people with dementia facing a perfect storm of rising care costs, leading many to reduce their care services and social activities while also struggling to heat their homes.
“Christmas is usually a time of joy and togetherness, but for many people living with dementia, it will be desperately lonely this year, with many isolated in their own homes.
“No one should have to choose between heating their home or getting the care they need, but as people with dementia face rising care costs, more than one in seven across Sussex are choosing to reduce or stop their social activities, while one in ten have reduced or stopped using social care.”
Ms Lee also criticised the decision by the government to delay plans to introduce a £86,000 limit on personal contributions for their own care.
She said: “This was a first step towards tackling crippling care costs, at a time when people with dementia are facing even bigger bills.
“As we approach the difficult winter ahead, a long-term solution is needed to fix our broken care system and deliver the quality, affordable care people with dementia deserve.
“Many with dementia already feel isolated and this winter it is going to get worse.”
People affected by dementia who need help can call the charity’s support line on 0333 150 3456 or visit alzheimers.org.uk/costofliving.
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